National Hepatitis C Database for people infected through blood and blood products

The database was developed in 2004 and baseline data on consenting patients, and patients who have died, was collected in 2005 and 2006. Over 70% of eligible patients consented and were included in the baseline data. The baseline report was published in 2007 and is available here.

This is an ongoing project and follow-up data on this cohort is collected annually. Eligible patients can consent at any stage and the patient information leaflet is available here. Further information and consent forms are available through the eight hepatology units. The third round of data collection was carried out in 2008-2009. Almost 76% of eligible patients, comprising those who consented and those who have died, are now included in the database.

The database 2010 report was launched on 2nd October 2010 and is available here.